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Capture-recapture methodology to study rare conditions using surveillance data for fragile X syndrome and muscular dystrophy
BACKGROUND: Rare conditions can be catastrophic for families and the implications for public health can be substantial. Our study compared basic surveillance through active medical record review with a linked administrative data file to assess the number of cases of two rare conditions, fragile X sy...
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| Publicado no: | Orphanet J Rare Dis |
|---|---|
| Main Authors: | , , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
BioMed Central
2017
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5399384/ https://ncbi.nlm.nih.gov/pubmed/28427448 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-017-0628-y |
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