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Clinical patient registry recruitment and retention: a survey of patients in two chronic disease registries

BACKGROUND: The collection of routine clinical data in the setting of research registries can serve an important role in understanding real world care. However, relatively little is known about the patient experience in registries, motivating us to survey patients enrolled in two chronic disease reg...

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Detalhes bibliográficos
Publicado no:BMC Med Res Methodol
Main Authors: Solomon, Daniel H., Shadick, Nancy A., Weinblatt, Michael E., Frits, Michelle, Iannaccone, Christine, Zak, Agnes, Korzenik, Joshua R.
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2017
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5392954/
https://ncbi.nlm.nih.gov/pubmed/28415991
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12874-017-0343-3
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