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International multiphase mixed methods study protocol to develop a cross-cultural patient-reported outcome instrument for children and young adults with cleft lip and/or palate (CLEFT-Q)

INTRODUCTION: Patient-reported outcome (PRO) instruments should be developed according to rigorous guidelines in order to provide clinically meaningful, scientifically sound measurement. Understanding the methodology behind instrument development informs the selection of the most appropriate tool. T...

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Dettagli Bibliografici
Pubblicato in:BMJ Open
Autori principali: Wong Riff, Karen W Y, Tsangaris, Elena, Goodacre, Tim, Forrest, Christopher R, Pusic, Andrea L, Cano, Stefan J, Klassen, Anne F
Natura: Artigo
Lingua:Inglês
Pubblicazione: BMJ Publishing Group 2017
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Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC5253569/
https://ncbi.nlm.nih.gov/pubmed/28077415
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1136/bmjopen-2016-015467
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