Development of a disease-specific quality of life questionnaire for patients with aplastic anemia and/or paroxysmal nocturnal hemoglobinuria (QLQ-AA/PNH)—report on phases I and II

Acquired aplastic anemia (AA) and paroxysmal nocturnal hemoglobinuria (PNH) are interrelated ultra-rare diseases. Quality of life (QoL) evaluation tools used in studies for AA and PNH are unspecific and designed for cancer patients (e.g., the European Organization for Research and Treatment of Cance...

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Shranjeno v:
Bibliografske podrobnosti
izdano v:Ann Hematol
Main Authors: Groth, Martha, Singer, Susanne, Niedeggen, Cathrin, Petermann-Meyer, Andrea, Röth, Alexander, Schrezenmeier, Hubert, Höchsmann, Britta, Brümmendorf, Tim H., Panse, Jens
Format: Artigo
Jezik:Inglês
Izdano: Springer Berlin Heidelberg 2016
Teme:
Original Article
Online dostop:https://ncbi.nlm.nih.gov/pmc/articles/PMC5226974/
https://ncbi.nlm.nih.gov/pubmed/27837250
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s00277-016-2867-8
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