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Parents’ Experiences of Receiving the Initial Positive Newborn Screening (NBS) Result for Cystic Fibrosis and Sickle Cell Disease

The clinical advantages of the newborn screening programme (NBS) in the UK are well described in the literature. However, there has been little exploration of the psychosocial impact on the family. This study followed the principles of grounded theory to explore parents’ experiences of receiving the...

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Detalhes bibliográficos
Publicado no:J Genet Couns
Main Authors: Chudleigh, Jane, Buckingham, Sarah, Dignan, Jo, O’Driscoll, Sandra, Johnson, Kemi, Rees, David, Wyatt, Hilary, Metcalfe, Alison
Formato: Artigo
Idioma:Inglês
Publicado em: Springer US 2016
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5114338/
https://ncbi.nlm.nih.gov/pubmed/27098418
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s10897-016-9959-4
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