Phenylketonuria patients’ and their parents’ acceptance of the disease: multi-centre study

PURPOSE: Phenylketonuria (PKU) still poses a therapeutic challenge for patients and medical professionals. The aim of the study was to assess both patients’ and their parents’ acceptance of the disease. METHODS: The study included 218 PKU patients and 178 parents of PKU children who were enrolled in...

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出版年:Qual Life Res
主要な著者: Witalis, Ewa, Mikoluc, Bożena, Motkowski, Radoslaw, Szyszko, Justyna, Chrobot, Agnieszka, Didycz, Bozena, Lange, Agata, Mozrzymas, Renata, Milanowski, Andrzej, Nowacka, Maria, Piotrowska-Depta, Mariola, Romanowska, Hanna, Starostecka, Ewa, Wierzba, Jolanta, Skorniewska, Magdalena, Wojcicka-Bartlomiejczyk, Barbara Iwona, Gizewska, Maria
フォーマット: Artigo
言語:Inglês
出版事項: Springer International Publishing 2016
主題:
Article
オンライン･アクセス:https://ncbi.nlm.nih.gov/pmc/articles/PMC5065618/
https://ncbi.nlm.nih.gov/pubmed/27245777
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s11136-016-1326-2
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