Development of a fragile X syndrome (FXS) knowledge scale: towards a modified multidimensional measure of informed choice for FXS population carrier screening

BACKGROUND: Genetic carrier screening is increasingly possible for many conditions, but it is important to ensure decisions are informed. The multidimensional measure of informed choice (MMIC) is a quantitative instrument developed to evaluate informed choice in prenatal screening for Down syndrome,...

पूर्ण विवरण

में बचाया:
ग्रंथसूची विवरण
में प्रकाशित:Health Expect
मुख्य लेखकों: Ames, Alice G., Jaques, Alice, Ukoumunne, Obioha C., Archibald, Alison D., Duncan, Rony E., Emery, Jon, Metcalfe, Sylvia A.
स्वरूप: Artigo
भाषा:Inglês
प्रकाशित: John Wiley and Sons Inc. 2012
विषय:
Original Research Papers
ऑनलाइन पहुंच:https://ncbi.nlm.nih.gov/pmc/articles/PMC5060759/
https://ncbi.nlm.nih.gov/pubmed/23067225
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1111/hex.12009
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