Development of a fragile X syndrome (FXS) knowledge scale: towards a modified multidimensional measure of informed choice for FXS population carrier screening

BACKGROUND: Genetic carrier screening is increasingly possible for many conditions, but it is important to ensure decisions are informed. The multidimensional measure of informed choice (MMIC) is a quantitative instrument developed to evaluate informed choice in prenatal screening for Down syndrome,...

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Dettagli Bibliografici
Pubblicato in:Health Expect
Autori principali: Ames, Alice G., Jaques, Alice, Ukoumunne, Obioha C., Archibald, Alison D., Duncan, Rony E., Emery, Jon, Metcalfe, Sylvia A.
Natura: Artigo
Lingua:Inglês
Pubblicazione: John Wiley and Sons Inc. 2012
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Original Research Papers
Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC5060759/
https://ncbi.nlm.nih.gov/pubmed/23067225
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1111/hex.12009
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