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What, if anything, is specific about having a rare disorder? Patients’ judgements on being ill and being rare
Background Growing efforts are made to improve the situation of persons with rare diseases, but the specific nature of these disorders remains unclear. Objectives To establish (1) to what extent people with rare disorders think that their disease’s rarity causes particular difficulties, (2) to wha...
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| Publicat a: | Health Expect |
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| Autor principal: | |
| Format: | Artigo |
| Idioma: | Inglês |
| Publicat: |
Blackwell Publishing Ltd
2009
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| Matèries: | |
| Accés en línia: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5060508/ https://ncbi.nlm.nih.gov/pubmed/19840131 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1111/j.1369-7625.2009.00552.x |
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