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Trust, vulnerable populations, and genetic data sharing

Recent policies and proposed regulations, including the Notice of Proposed Rulemaking for the Common Rule and the 2014 NIH Genetic Data Sharing Policy, seek to improve research subject protections. Protections for subjects whose genetic data is shared are critical to reduce risks such as loss of con...

Ausführliche Beschreibung

Gespeichert in:
Bibliographische Detailangaben
Veröffentlicht in:J Law Biosci
Hauptverfasser: Arias, Jalayne J., Pham-Kanter, Genevieve, Gonzalez, Rosa, Campbell, Eric G.
Format: Artigo
Sprache:Inglês
Veröffentlicht: Oxford University Press 2015
Schlagworte:
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC5034389/
https://ncbi.nlm.nih.gov/pubmed/27774227
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1093/jlb/lsv044
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