Burden, professional support, and social network in families of children and young adults with muscular dystrophies

Introduction: This study explores burden and social and professional support in families of young patients with muscular dystrophies (MDs) in Italy. Methods: The study was carried out on 502 key relatives of 4‐ to 25‐year‐old patients suffering from Duchenne, Becker, or Limb‐Girdle MD who were livin...

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發表在:Muscle Nerve
Main Authors: Magliano, Lorenza, Patalano, Melania, Sagliocchi, Alessandra, Scutifero, Marianna, Zaccaro, Antonella, D'angelo, Maria Grazia, Civati, Federica, Brighina, Erika, Vita, Giuseppe, Vita, Gian Luca, Messina, Sonia, Sframeli, Maria, Pane, Marika, Lombardo, Maria Elena, Scalise, Roberta, D'amico, Adele, Colia, Giulia, Catteruccia, Michela, Balottin, Umberto, Berardinelli, Angela, Chiara Motta, Maria, Angelini, Corrado, Gaiani, Alessandra, Semplicini, Claudio, Bello, Luca, Battini, Roberta, Astrea, Guja, Politano, Luisa
格式: Artigo
語言:Inglês
出版: John Wiley and Sons Inc. 2015
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Research Articles
在線閱讀:https://ncbi.nlm.nih.gov/pmc/articles/PMC5029774/
https://ncbi.nlm.nih.gov/pubmed/25363165
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/mus.24503
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