Collecting clinical data in primary ciliary dyskinesia- challenges and opportunities

Rationale: Primary ciliary dyskinesia (PCD) is under diagnosed and underestimated. Most clinical research has used some form of questionnaires to capture data but none has been critically evaluated particularly with respect to its end-user feasibility and utility. Objective: To critically appraise a...

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Detalhes bibliográficos
Publicado no:F1000Res
Main Authors: Amirav, Israel, Roduta Roberts, Mary, Mussaffi, Huda, Mandelberg, Avigdor, Roth, Yehudah, Abitbul, Revital, Luder, Anthony, Blau, Hannah, Alkrinawi, Soliman, Aviram, Micha, Ben-Ami, Marta, Rotschild, Moshe, Bentur, Lea, Shoseyov, David, Cohen-Cymberknoh, Malena, Kerem, Eitan, Avital, Avraham, Springer, Chaim, Hevroni, Avigdor, Dabbah, Husein, Elizur, Arnon, Picard, Elie, Goldberg, Shmuel, Rivlin, Joseph, Livnat, Galit, Lavie, Moran, Alias, Nael, Soferman, Ruth, Olbrich, Heike, Raidt, Johanna, Wallmeier, Julia, Werner, Claudius, Loges, Niki T., Omran, Heymut
Formato: Artigo
Idioma:Inglês
Publicado em: F1000Research 2016
Assuntos:
Research Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5022703/
https://ncbi.nlm.nih.gov/pubmed/27781089
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.12688/f1000research.9323.2
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