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The personal burden for caregivers of children with phenylketonuria: A cross-sectional study investigating time burden and costs in the UK
INTRODUCTION: Management of phenylketonuria (PKU) is mainly achieved through strict dietary control that aims to limit the intake of phenylalanine (Phe). Adherence to this diet is burdensome due to the need for specially prepared low-Phe meals and regular monitoring of Phe concentrations. A UK cross...
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| Vydáno v: | Mol Genet Metab Rep |
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| Hlavní autoři: | , , , , |
| Médium: | Artigo |
| Jazyk: | Inglês |
| Vydáno: |
Elsevier
2016
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| Témata: | |
| On-line přístup: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5009233/ https://ncbi.nlm.nih.gov/pubmed/27622144 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.ymgmr.2016.08.008 |
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