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How can clinical ethics guide the management of comorbidities in the child with Rett syndrome?
Rett syndrome is a rare disorder caused by a mutation in the MECP2 gene. Those affected generally have severe functional impairments and medical comorbidities such as scoliosis and poor growth are common. There is a paucity of information on the natural history of many rare disorders and an even gre...
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| Publicado no: | J Paediatr Child Health |
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| Main Authors: | , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
2016
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC4990489/ https://ncbi.nlm.nih.gov/pubmed/27243819 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1111/jpc.13241 |
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