Standardised Outcomes in Nephrology—Children and Adolescents (SONG-Kids): a protocol for establishing a core outcome set for children with chronic kidney disease

BACKGROUND: Children with chronic kidney disease (CKD), requiring dialysis or kidney transplantation, have a mortality rate of up to 30-fold higher than the general aged-matched population, and severely impaired quality of life. Symptoms such as fatigue and pain are prevalent and debilitating. Child...

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Detalhes bibliográficos
Publicado no:Trials
Main Authors: Tong, Allison, Samuel, Susan, Zappitelli, Michael, Dart, Allison, Furth, Susan, Eddy, Allison, Groothoff, Jaap, Webb, Nicholas J. A., Yap, Hui-Kim, Bockenhauer, Detlef, Sinha, Aditi, Alexander, Stephen I., Goldstein, Stuart L., Gipson, Debbie S., Hanson, Camilla S., Evangelidis, Nicole, Crowe, Sally, Harris, Tess, Hemmelgarn, Brenda R., Manns, Braden, Gill, John, Tugwell, Peter, Van Biesen, Wim, Wheeler, David C., Winkelmayer, Wolfgang C., Craig, Jonathan C.
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2016
Assuntos:
Study Protocol
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC4982996/
https://ncbi.nlm.nih.gov/pubmed/27519274
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13063-016-1528-5
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