Health Care Delivery Practices in Huntington’s Disease Specialty Clinics: An International Survey

Background: Little is known about the organization of clinical services for Huntington’s disease (HD). Objective: To describe how health care services are organized and delivered in HD-clinics taking part in or eligible for the Enroll-HD study. Methods: In 2014, a 69-item survey was administered to...

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Dades bibliogràfiques
Publicat a:J Huntingtons Dis
Autors principals: Frich, Jan C., Rae, Daniela, Roxburgh, Richard, Miedzybrodzka, Zofia H., Edmondson, Mary, Pope, Erika Bjorklund, Goodman, LaVonne, Haddad, Monica S., Giuliano, Joe, Nelson, Eugene C., Guttman, Mark, Nance, Martha
Format: Artigo
Idioma:Inglês
Publicat: IOS Press 2016
Matèries:
Research Report
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC4942722/
https://ncbi.nlm.nih.gov/pubmed/27372053
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.3233/JHD-160192
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