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Caretaker Quality of Life in Rett Syndrome: Disorder Features and Psychological Predictors

OBJECTIVE: Rett syndrome (RTT) is a severe neurodevelopmental disorder affecting approximately one in 10,000 female births. The clinical features of RTT are known to impact both patients’ and caretakers’ quality of life (QOL) in RTT. We hypothesized that more severe clinical features would negativel...

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Publicado en:Pediatr Neurol
Main Authors: Killian, JT., Lane, JB., Lee, H-S, Pelham, JH., Skinner, SA., Kaufmann, WE., Glaze, DG., Neul, JL., Percy, AK.
Formato: Artigo
Idioma:Inglês
Publicado: 2016
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Acceso en liña:https://ncbi.nlm.nih.gov/pmc/articles/PMC4899118/
https://ncbi.nlm.nih.gov/pubmed/26995066
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.pediatrneurol.2015.12.021
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