Developing a public health-tracking system for follow-up of newborn screening metabolic conditions: a four-state pilot project structure and initial findings

PURPOSE: The aim of this study was to describe the methods, cases, and initial results of a pilot project using existing public health data collection programs (birth defect surveillance or newborn screening) to conduct long-term follow-up of children with metabolic disorders. METHODS: California, I...

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Veröffentlicht in:Genet Med
Hauptverfasser: Hinton, Cynthia F., Mai, Cara T., Nabukera, Sarah K., Botto, Lorenzo D., Feuchtbaum, Lisa, Romitti, Paul A., Wang, Ying, Piper, Kimberly Noble, Olney, Richard S.
Format: Artigo
Sprache:Inglês
Veröffentlicht: 2013
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Article
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC4881836/
https://ncbi.nlm.nih.gov/pubmed/24310309
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/gim.2013.177
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