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IRB perspectives on obligations to disclose genetic incidental findings to research participants

PURPOSE: Researchers’ obligations to disclose genetic incidental findings (GIFs) have been widely debated, but there has been little empirical study of IRBs’ engagement with this issue. METHODS: This article presents data from the first extensive (n=796) national survey of IRB professionals’ underst...

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Detalhes bibliográficos
Publicado no:Genet Med
Main Authors: Gliwa, Catherine, Yurkiewicz, Ilana R., Lehmann, Lisa Soleymani, Hull, Sara Chandros, Jones, Nathan, Berkman, Benjamin E.
Formato: Artigo
Idioma:Inglês
Publicado em: 2015
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC4873456/
https://ncbi.nlm.nih.gov/pubmed/26583685
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/gim.2015.149
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