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Balancing Benefits and Risks of Immortal Data: Participants’ Views of Open Consent in the Personal Genome Project
The NIH Genomic Data Sharing Policy, effective in January 2015, encourages researchers to obtain broad consent to share data for unspecified biomedical research. The ethics of extensive data sharing depend in part on study participants’ understanding of the risks and benefits. Interviews with partic...
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| Publicado no: | Hastings Cent Rep |
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| Main Authors: | , , , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
2015
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC4871108/ https://ncbi.nlm.nih.gov/pubmed/26678513 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/hast.523 |
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