Quantifying the burden of caregiving in Duchenne muscular dystrophy

Duchenne muscular dystrophy (DMD) is a rare pediatric neuromuscular disease associated with progressive muscle degeneration and extensive care needs. Our objective was to estimate the caregiver burden associated with DMD. We made cross-sectional assessments of caregiver health-related quality of lif...

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Bibliographic Details
Published in:J Neurol
Main Authors: Landfeldt, Erik, Lindgren, Peter, Bell, Christopher F., Guglieri, Michela, Straub, Volker, Lochmüller, Hanns, Bushby, Katharine
Format: Artigo
Language:Inglês
Published: Springer Berlin Heidelberg 2016
Subjects:
Original Communication
Online Access:https://ncbi.nlm.nih.gov/pmc/articles/PMC4859858/
https://ncbi.nlm.nih.gov/pubmed/26964543
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s00415-016-8080-9
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