Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study

BACKGROUND: Electronic health records are widely acknowledged to provide an important opportunity to anonymize patient-level health care data and collate across populations to support research. Nonetheless, in the wake of public and policy concerns about security and inappropriate use of data, conve...

Disgrifiad llawn

Wedi'i Gadw mewn:
Manylion Llyfryddiaeth
Cyhoeddwyd yn:J Med Internet Res
Prif Awduron: Spencer, Karen, Sanders, Caroline, Whitley, Edgar A, Lund, David, Kaye, Jane, Dixon, William Gregory
Fformat: Artigo
Iaith:Inglês
Cyhoeddwyd: JMIR Publications Inc. 2016
Pynciau:
Original Paper
Mynediad Ar-lein:https://ncbi.nlm.nih.gov/pmc/articles/PMC4851723/
https://ncbi.nlm.nih.gov/pubmed/27083521
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2196/jmir.5011
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