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Developing an intervention to facilitate family communication about inherited genetic conditions, and training genetic counsellors in its delivery

Many families experience difficulty in talking about an inherited genetic condition that affects one or more of them. There have now been a number of studies identifying the issues in detail, however few have developed interventions to assist families. The SPRinG collaborative have used the UK Medic...

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Publicado en:Eur J Hum Genet
Main Authors: Eisler, Ivan, Ellison, Matthew, Flinter, Frances, Grey, Jo, Hutchison, Suzanne, Jackson, Carole, Longworth, Louise, MacLeod, Rhona, McAllister, Marion, Metcalfe, Alison, Murrells, Trevor, Patch, Christine, Pritchard, Stuart, Robert, Glenn, Rowland, Emma, Ulph, Fiona
Formato: Artigo
Idioma:Inglês
Publicado: Nature Publishing Group 2016
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Acceso en liña:https://ncbi.nlm.nih.gov/pmc/articles/PMC4820094/
https://ncbi.nlm.nih.gov/pubmed/26443265
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/ejhg.2015.215
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