Patients’ Views on Identifiability of Samples and Informed Consent for Genetic Research

It is unclear whether the regulatory distinction between non-identifiable and identifiable information — information used to determine informed consent practices for the use of clinically derived samples for genetic research — is meaningful to patients. The objective of this study was to examine pat...

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Detalhes bibliográficos
Publicado no:Am J Bioeth
Main Authors: Hull, Sara Chandros, Sharp, Richard R., Botkin, Jeffrey R., Brown, Mark, Hughes, Mark, Sugarman, Jeremy, Schwinn, Debra, Sankar, Pamela, Bolcic-Jankovic, Dragana, Clarridge, Brian R., Wilfond, Benjamin S., Katz, Treuman
Formato: Artigo
Idioma:Inglês
Publicado em: 2008
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Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC4819322/
https://ncbi.nlm.nih.gov/pubmed/19003716
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1080/15265160802478404
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