Enhancing genomic laboratory reports from the patients' view: A qualitative analysis

The purpose of this study was to develop a family genomic laboratory report designed to communicate genome sequencing results to parents of children who were participating in a whole genome sequencing clinical research study. Semi‐structured interviews were conducted with parents of children who par...

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Bibliografiske detaljer
Udgivet i:Am J Med Genet A
Main Authors: Stuckey, Heather, Williams, Janet L., Fan, Audrey L., Rahm, Alanna Kulchak, Green, Jamie, Feldman, Lynn, Bonhag, Michele, Zallen, Doris T., Segal, Michael M., Williams, Marc S.
Format: Artigo
Sprog:Inglês
Udgivet: John Wiley and Sons Inc. 2015
Fag:
Research Articles
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC4744953/
https://ncbi.nlm.nih.gov/pubmed/26086630
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/ajmg.a.37174
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