Position statement on the role of healthcare professionals, patient organizations and industry in European Reference Networks

A call from the EU for the set-up of European Reference Networks (ERNs) is expected to be launched in the first quarter of 2016. ERNs are intended to improve the care for patients with low prevalent or rare diseases throughout the EU by, among other things, facilitating the pooling and exchange of e...

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書誌詳細
出版年:Orphanet J Rare Dis
主要な著者: Hollak, Carla E. M., Biegstraaten, Marieke, Baumgartner, Matthias R., Belmatoug, Nadia, Bembi, Bruno, Bosch, Annet, Brouwers, Martijn, Dekker, Hanka, Dobbelaere, Dries, Engelen, Marc, Groenendijk, Marike C., Lachmann, Robin, Langendonk, Janneke G., Langeveld, Mirjam, Linthorst, Gabor, Morava, Eva, Poll-The, Bwee Tien, Rahman, Shamima, Rubio-Gozalbo, M. Estela, Spiekerkoetter, Ute, Treacy, Eileen, Wanders, Ronald, Zschocke, Johannes, Hagendijk, Rob
フォーマット: Artigo
言語:Inglês
出版事項: BioMed Central 2016
主題:
Position Statement
オンライン･アクセス:https://ncbi.nlm.nih.gov/pmc/articles/PMC4727340/
https://ncbi.nlm.nih.gov/pubmed/26809514
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-016-0383-5
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