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Understanding the experiences and needs of individuals with Spinal Muscular Atrophy and their parents: a qualitative study
BACKGROUND: The clinical features of SMA, which range along a spectrum of severity, are relatively well described. In contrast, the literature on how individuals with SMA and their families experience this condition is limited. To address this gap, we undertook a qualitative study with individuals a...
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| Publicado no: | BMC Neurol |
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| Main Authors: | , , , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
BioMed Central
2015
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC4619513/ https://ncbi.nlm.nih.gov/pubmed/26499462 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12883-015-0473-3 |
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