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Preferences Regarding Return of Genomic Results to Relatives of Research Participants, Including after Participant Death: Empirical Results from a Cancer Biobank

Data are lacking with regard to participants’ perspectives on return of genetic research results to relatives, including after the participant’s death. This paper reports descriptive results from 3,630 survey respondents: 464 participants in a pancreatic cancer biobank, 1,439 family registry partici...

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Bibliografski detalji
Izdano u:J Law Med Ethics
Glavni autori: Breitkopf, Carmen Radecki, Petersen, Gloria M., Wolf, Susan M., Chaffee, Kari G., Robinson, Marguerite E., Gordon, Deborah R., Lindor, Noralane M., Koenig, Barbara A.
Format: Artigo
Jezik:Inglês
Izdano: 2015
Teme:
Online pristup:https://ncbi.nlm.nih.gov/pmc/articles/PMC4617194/
https://ncbi.nlm.nih.gov/pubmed/26479556
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1111/jlme.12289
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