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Assessment of the impact of phenylketonuria and its treatment on quality of life of patients and parents from seven European countries
BACKGROUND: The strict and demanding dietary treatment and mild cognitive abnormalities seen in PKU treated from a young age can be expected to affect the health-related quality of life (HRQoL) of patients and their families. Our aim was to describe the HRQoL of patients with PKU from a large intern...
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Publicado no: | Orphanet J Rare Dis |
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Main Authors: | , , , , , , , |
Formato: | Artigo |
Idioma: | Inglês |
Publicado em: |
BioMed Central
2015
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Assuntos: | |
Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC4542123/ https://ncbi.nlm.nih.gov/pubmed/26084935 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-015-0294-x |
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