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Fair Shares and Sharing Fairly: A Survey of Public Views on Open Science, Informed Consent and Participatory Research in Biobanking

CONTEXT: Biobanks are important resources which enable large-scale genomic research with human samples and data, raising significant ethical concerns about how participants’ information is managed and shared. Three previous studies of the Canadian public’s opinion about these topics have been conduc...

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Détails bibliographiques
Publié dans:PLoS One
Auteurs principaux: Joly, Yann, Dalpé, Gratien, So, Derek, Birko, Stanislav
Format: Artigo
Langue:Inglês
Publié: Public Library of Science 2015
Sujets:
Accès en ligne:https://ncbi.nlm.nih.gov/pmc/articles/PMC4495996/
https://ncbi.nlm.nih.gov/pubmed/26154134
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1371/journal.pone.0129893
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