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Development and content validity testing of a patient-reported outcomes questionnaire for the assessment of hereditary angioedema in observational studies
BACKGROUND: Hereditary Angioedema (HAE), a rare genetic disease, manifests as intermittent, painful attacks of angioedema. Attacks vary in frequency and severity and include skin, abdominal and life-threatening laryngeal swellings. This study aimed to develop a patient reported outcome (PRO) tool fo...
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| Publicado no: | Health Qual Life Outcomes |
|---|---|
| Main Authors: | , , , , , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
BioMed Central
2015
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC4487558/ https://ncbi.nlm.nih.gov/pubmed/26129930 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12955-015-0292-7 |
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