Development and content validity testing of a patient-reported outcomes questionnaire for the assessment of hereditary angioedema in observational studies

BACKGROUND: Hereditary Angioedema (HAE), a rare genetic disease, manifests as intermittent, painful attacks of angioedema. Attacks vary in frequency and severity and include skin, abdominal and life-threatening laryngeal swellings. This study aimed to develop a patient reported outcome (PRO) tool fo...

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Detalhes bibliográficos
Publicado no:Health Qual Life Outcomes
Main Authors: Bonner, Nicola, Abetz-Webb, Linda, Renault, Lydie, Caballero, Teresa, Longhurst, Hilary, Maurer, Marcus, Christiansen, Sandra, Zuraw, Bruce
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2015
Assuntos:
Research Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC4487558/
https://ncbi.nlm.nih.gov/pubmed/26129930
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12955-015-0292-7
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