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Evaluation of Implementation, Adaptation and Use of the Recently Proposed Urea Cycle Disorders Guidelines

Background: Implementation of guidelines and assessment of their adaptation is not an extensively investigated process in the field of rare diseases. However, whether targeted recipients are reached and willing and able to follow the recommendations has significant impact on the efficacy of guidelin...

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Shranjeno v:
Bibliografske podrobnosti
izdano v:JIMD Rep
Main Authors: Häberle, Johannes, Huemer, Martina
Format: Artigo
Jezik:Inglês
Izdano: Springer Berlin Heidelberg 2015
Teme:
Online dostop:https://ncbi.nlm.nih.gov/pmc/articles/PMC4470941/
https://ncbi.nlm.nih.gov/pubmed/25690729
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/8904_2014_387
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