Загрузка...

Evaluation of Implementation, Adaptation and Use of the Recently Proposed Urea Cycle Disorders Guidelines

Background: Implementation of guidelines and assessment of their adaptation is not an extensively investigated process in the field of rare diseases. However, whether targeted recipients are reached and willing and able to follow the recommendations has significant impact on the efficacy of guidelin...

Полное описание

Сохранить в:
Библиографические подробности
Опубликовано в: :JIMD Rep
Главные авторы: Häberle, Johannes, Huemer, Martina
Формат: Artigo
Язык:Inglês
Опубликовано: Springer Berlin Heidelberg 2015
Предметы:
Online-ссылка:https://ncbi.nlm.nih.gov/pmc/articles/PMC4470941/
https://ncbi.nlm.nih.gov/pubmed/25690729
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/8904_2014_387
Метки: Добавить метку
Нет меток, Требуется 1-ая метка записи!