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Rare diseases in ICD11: making rare diseases visible in health information systems through appropriate coding

BACKGROUND: Because of their individual rarity, genetic diseases and other types of rare diseases are under-represented in healthcare coding systems; this contributes to a lack of ascertainment and recognition of their importance for healthcare planning and resource allocation, and prevents clinical...

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Detalhes bibliográficos
Publicado no:Orphanet J Rare Dis
Main Authors: Aymé, Ségolène, Bellet, Bertrand, Rath, Ana
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2015
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC4377208/
https://ncbi.nlm.nih.gov/pubmed/25887186
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-015-0251-8
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