Measuring quality of life in muscular dystrophy

OBJECTIVES: The objectives of this study were to develop a conceptual model of quality of life (QOL) in muscular dystrophies (MDs) and review existing QOL measures for use in the MD population. METHODS: Our model for QOL among individuals with MD was developed based on a modified Delphi process, lit...

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Bibliografiska uppgifter
I publikationen:Neurology
Huvudupphovsmän: Bann, Carla M., Abresch, Richard T., Biesecker, Barbara, Conway, Kristin Caspers, Heatwole, Chad, Peay, Holly, Scal, Peter, Strober, Jonathan, Uzark, Karen, Wolff, Jodi, Margolis, Marjorie, Blackwell, Angela, Street, Natalie, Montesanti, Angela, Bolen, Julie
Materialtyp: Artigo
Språk:Inglês
Publicerad: Lippincott Williams & Wilkins 2015
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Article
Länkar:https://ncbi.nlm.nih.gov/pmc/articles/PMC4352095/
https://ncbi.nlm.nih.gov/pubmed/25663223
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1212/WNL.0000000000001336
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