Measuring quality of life in muscular dystrophy

OBJECTIVES: The objectives of this study were to develop a conceptual model of quality of life (QOL) in muscular dystrophies (MDs) and review existing QOL measures for use in the MD population. METHODS: Our model for QOL among individuals with MD was developed based on a modified Delphi process, lit...

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Detalhes bibliográficos
Publicado no:Neurology
Main Authors: Bann, Carla M., Abresch, Richard T., Biesecker, Barbara, Conway, Kristin Caspers, Heatwole, Chad, Peay, Holly, Scal, Peter, Strober, Jonathan, Uzark, Karen, Wolff, Jodi, Margolis, Marjorie, Blackwell, Angela, Street, Natalie, Montesanti, Angela, Bolen, Julie
Formato: Artigo
Idioma:Inglês
Publicado em: Lippincott Williams & Wilkins 2015
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Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC4352095/
https://ncbi.nlm.nih.gov/pubmed/25663223
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1212/WNL.0000000000001336
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