Measuring quality of life in muscular dystrophy

OBJECTIVES: The objectives of this study were to develop a conceptual model of quality of life (QOL) in muscular dystrophies (MDs) and review existing QOL measures for use in the MD population. METHODS: Our model for QOL among individuals with MD was developed based on a modified Delphi process, lit...

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Bibliografiset tiedot
Julkaisussa:Neurology
Päätekijät: Bann, Carla M., Abresch, Richard T., Biesecker, Barbara, Conway, Kristin Caspers, Heatwole, Chad, Peay, Holly, Scal, Peter, Strober, Jonathan, Uzark, Karen, Wolff, Jodi, Margolis, Marjorie, Blackwell, Angela, Street, Natalie, Montesanti, Angela, Bolen, Julie
Aineistotyyppi: Artigo
Kieli:Inglês
Julkaistu: Lippincott Williams & Wilkins 2015
Aiheet:
Article
Linkit:https://ncbi.nlm.nih.gov/pmc/articles/PMC4352095/
https://ncbi.nlm.nih.gov/pubmed/25663223
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1212/WNL.0000000000001336
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