Measuring quality of life in muscular dystrophy

OBJECTIVES: The objectives of this study were to develop a conceptual model of quality of life (QOL) in muscular dystrophies (MDs) and review existing QOL measures for use in the MD population. METHODS: Our model for QOL among individuals with MD was developed based on a modified Delphi process, lit...

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Publicat a:Neurology
Autors principals: Bann, Carla M., Abresch, Richard T., Biesecker, Barbara, Conway, Kristin Caspers, Heatwole, Chad, Peay, Holly, Scal, Peter, Strober, Jonathan, Uzark, Karen, Wolff, Jodi, Margolis, Marjorie, Blackwell, Angela, Street, Natalie, Montesanti, Angela, Bolen, Julie
Format: Artigo
Idioma:Inglês
Publicat: Lippincott Williams & Wilkins 2015
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Article
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC4352095/
https://ncbi.nlm.nih.gov/pubmed/25663223
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1212/WNL.0000000000001336
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