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The Tension Between Data Sharing and the Protection of Privacy in Genomics Research
Next-generation sequencing and global data sharing challenge many of the governance mechanisms currently in place to protect the privacy of research participants. These challenges will make it more difficult to guarantee anonymity for participants, provide information to satisfy the requirements of...
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Publicado no: | Annu Rev Genomics Hum Genet |
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Autor principal: | |
Formato: | Artigo |
Idioma: | Inglês |
Publicado em: |
2012
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Assuntos: | |
Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC4337968/ https://ncbi.nlm.nih.gov/pubmed/22404490 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1146/annurev-genom-082410-101454 |
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