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The Tension Between Data Sharing and the Protection of Privacy in Genomics Research

Next-generation sequencing and global data sharing challenge many of the governance mechanisms currently in place to protect the privacy of research participants. These challenges will make it more difficult to guarantee anonymity for participants, provide information to satisfy the requirements of...

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Detalles Bibliográficos
Publicado en:Annu Rev Genomics Hum Genet
Autor Principal: Kaye, Jane
Formato: Artigo
Idioma:Inglês
Publicado: 2012
Assuntos:
Acceso en liña:https://ncbi.nlm.nih.gov/pmc/articles/PMC4337968/
https://ncbi.nlm.nih.gov/pubmed/22404490
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1146/annurev-genom-082410-101454
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