Disclosure of Genetic Research Results to Members of a Founder Population

There is currently extensive discussion and debate in the literature on how, when, and to whom genetic research results should be returned (see Genetics in Medicine, April 2012 issue). Here, we describe our experience in disclosing genetic information on Mendelian disorders discovered during the cou...

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Veröffentlicht in:J Genet Couns
Hauptverfasser: Anderson, Rebecca L., Murray, Kathleen, Chong, Jessica X., Ouwenga, Rebecca, Antillon, Marina, Chen, Peixian, de Leon, Lorena Diaz, Swoboda, Kathryn J., Lester, Lucille A., Das, Soma, Ober, Carole, Waggoner, Darrel J.
Format: Artigo
Sprache:Inglês
Veröffentlicht: 2014
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Article
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC4337808/
https://ncbi.nlm.nih.gov/pubmed/24777552
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s10897-014-9721-8
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