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A tale worth telling: The impact of the diagnosis experience on disclosure of genetic disorders

BACKGROUND: Research suggests children with genetic disorders exhibit greater coping skills when they are aware of their condition and its heritability. While the experiences parents have at diagnosis may influence their decision to disclose the diagnosis to their children, there is little research...

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Bibliografiske detaljer
Udgivet i:J Intellect Disabil Res
Main Authors: Goodwin, Jane, Schoch, Kelly, Shashi, Vandana, Hooper, Stephen R., Gothelf, Doron, Zalevsky, Moran, Morad, Ola, Campbell, Linda E.
Format: Artigo
Sprog:Inglês
Udgivet: 2014
Fag:
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC4305500/
https://ncbi.nlm.nih.gov/pubmed/25059276
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1111/jir.12151
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