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Participation of underrepresented minority children in clinical trials for Fragile X syndrome and other neurodevelopmental disorders

The purpose of this study was to identify demographic data, motivational factors and barriers for participation in clinical trials (CTs) at the University of California Davis, MIND Institute. We conducted a cross-sectional survey in 100 participants (81 females and 19 males). The participants had hi...

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Detalhes bibliográficos
Publicado no:Intractable Rare Dis Res
Main Authors: Chechi, Tasleem, Siyahian, Salpi, Thairu, Lucy, Hagerman, Randi, Lozano, Reymundo
Formato: Artigo
Idioma:Inglês
Publicado em: International Research and Cooperation Association for Bio & Socio-Sciences Advancement 2014
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC4298644/
https://ncbi.nlm.nih.gov/pubmed/25606364
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.5582/irdr.2014.01025
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