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Testing an Online, Dynamic Consent Portal for Large Population Biobank Research

BACKGROUND: Michigan's BioTrust for Health, a public health research biobank comprised of residual dried bloodspot (DBS) cards from newborn screening contains over 4 million samples collected without written consent. Participant-centric initiatives (PCI) are IT tools that hold great promise to...

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Detalles Bibliográficos
Publicado en:Public Health Genomics
Main Authors: Thiel, Daniel B., Platt, Jodyn, Platt, Tevah, King, Susan B., Fisher, Nicole, Shelton, Robert, Kardia, Sharon L. R.
Formato: Artigo
Idioma:Inglês
Publicado: 2014
Assuntos:
Acceso en liña:https://ncbi.nlm.nih.gov/pmc/articles/PMC4289420/
https://ncbi.nlm.nih.gov/pubmed/25359560
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1159/000366128
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