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QOL in caregivers of Japanese patients with Prader–Willi syndrome with reference to age and genotype

This study aimed to measure quality of life (QOL) of the primary family caregivers for patients with Prader–Willi syndrome (PWS). Comparisons were made between caregivers' QOL in regard to their dependents' genotype and age group. The participants with PWS consisted of 22 children (aged fr...

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Pubblicato in:Am J Med Genet A
Autori principali: Ihara, Hiroshi, Ogata, Hiroyuki, Sayama, Masayuki, Kato, Aya, Gito, Masao, Murakami, Nobuyuki, Kido, Yasuhiro, Nagai, Toshiro
Natura: Artigo
Lingua:Inglês
Pubblicazione: BlackWell Publishing Ltd 2014
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Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC4278419/
https://ncbi.nlm.nih.gov/pubmed/24953026
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/ajmg.a.36634
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