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Quality-of-Life in Charcot Marie Tooth Disease: The Patient's Perspective

This study determines the impact of symptoms associated with Charcot-Marie-Tooth disease on quality-of-life. Charcot-Marie-Tooth patients in the Inherited Neuropathies Consortium Rare Diseases Clinical Research Network Contact Registry were surveyed. The survey inquired about 214 symptoms and 20 the...

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Detalles Bibliográficos
Publicado en:Neuromuscul Disord
Autores principales: Johnson, Nicholas E, Heatwole, Chad R, Dilek, Nuran, Sowden, Janet, Kirk, Callyn A, Shereff, Denise, Shy, Michael E, Herrmann, David N
Formato: Artigo
Lenguaje:Inglês
Publicado: 2014
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Acceso en línea:https://ncbi.nlm.nih.gov/pmc/articles/PMC4253871/
https://ncbi.nlm.nih.gov/pubmed/25092060
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.nmd.2014.06.433
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