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Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases
PURPOSE: To explore parental perceptions and experiences regarding the return of genomic incidental research findings in children with rare diseases. METHODS: Parents of children affected by various rare diseases were invited to participate in focus groups or individual telephone interviews in Montr...
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主要な著者: | , , , , , , , , |
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フォーマット: | Artigo |
言語: | Inglês |
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BMJ Publishing Group
2014
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オンライン・アクセス: | https://ncbi.nlm.nih.gov/pmc/articles/PMC4173986/ https://ncbi.nlm.nih.gov/pubmed/24356209 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1136/medethics-2013-101648 |
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