A call for action to improve access to care and treatment for patients with rare diseases in the Asia-Pacific region

This article is a call for action to the relevant stakeholders to improve access to care and treatment for patients with rare diseases in the Asia-Pacific region by looking into three main areas: (a) developing legislative definitions to confer enforceable protection, (b) creating or strengthening p...

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Dettagli Bibliografici
Autori principali: Soon, Swee-Sung, Lopes, Gilberto, Lim, Hwee-Yong, Wong-Rieger, Durhane, Bahri, Salmah, Hickinbotham, Lucy, Jha, Anand, Ko, Bor-Sheng, MacDonell, Diana, Pwu, Jasmine Roah-Fang, Shih, Ruby, Sirachainan, Ekaphop, Suh, Dong-Churl, Wale, Janet, Zhang, Xiao, Wee, Hwee-Lin
Natura: Artigo
Lingua:Inglês
Pubblicazione: BioMed Central 2014
Soggetti:
Letter to the Editor
Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC4172816/
https://ncbi.nlm.nih.gov/pubmed/25223275
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-014-0137-1
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