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Knowing who to trust: exploring the role of ‘ethical metadata’ in mediating risk of harm in collaborative genomics research in Africa

BACKGROUND: The practice of making datasets publicly available for use by the wider scientific community has become firmly integrated in genomic science. One significant gap in literature around data sharing concerns how it impacts on scientists’ ability to preserve values and ethical standards that...

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Detalhes bibliográficos
Main Authors: de Vries, Jantina, Williams, Thomas N, Bojang, Kalifa, Kwiatkowski, Dominic P, Fitzpatrick, Raymond, Parker, Michael
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2014
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC4146449/
https://ncbi.nlm.nih.gov/pubmed/25124199
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1472-6939-15-62
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