Practical Barriers and Ethical Challenges in Genetic Data Sharing

The underlying ethos of dbGaP is that access to these data by secondary data analysts facilitates advancement of science. NIH has required that genome-wide association study data be deposited in the Database of Genotypes and Phenotypes (dbGaP) since 2003. In 2013, a proposed updated policy extended...

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Detalhes bibliográficos
Main Authors: Simpson, Claire L., Goldenberg, Aaron J., Culverhouse, Rob, Daley, Denise, Igo, Robert P., Jarvik, Gail P., Mandal, Diptasri M., Mascalzoni, Deborah, Montgomery, Courtney Gray, Pierce, Brandon L., Plaetke, Rosemarie, Shete, Sanjay, Goddard, Katrina A. B., Stein, Catherine M.
Formato: Artigo
Idioma:Inglês
Publicado em: MDPI 2014
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Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC4143867/
https://ncbi.nlm.nih.gov/pubmed/25153467
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.3390/ijerph110808383
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