The Rare Diseases Clinical Research Network’s Organization and Approach to Observational Research and Health Outcomes Research

Established in 2003 by the Office of Rare Diseases Research (ORDR), in collaboration with several National Institutes of Health (NIH) Institutes/Centers, the Rare Diseases Clinical Research Network (RDCRN) consists of multiple clinical consortia conducting research in more than 200 rare diseases. Th...

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Bibliographische Detailangaben
Hauptverfasser: Krischer, Jeffrey P., Gopal-Srivastava, Rashmi, Groft, Stephen. C., Eckstein, David J.
Format: Artigo
Sprache:Inglês
Veröffentlicht: Springer US 2014
Schlagworte:
Original Research
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC4124127/
https://ncbi.nlm.nih.gov/pubmed/25029976
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s11606-014-2894-x
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