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Patient Identified Disease Burden in Facioscapulohumeral Muscular Dystrophy

INTRODUCTION: The multitude of symptoms associated with facioscapulohumeral muscular dystrophy (FSHD) disease burden are of varying importance. The extent of these symptoms and their cumulative effect on the FSHD population is unknown. METHODS: We conducted interviews with adult FSHD patients to ide...

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Detalhes bibliográficos
Main Authors: Johnson, Nicholas E, Quinn, Christine, Eastwood, Eileen, Tawil, Rabi, Heatwole, Chad R
Formato: Artigo
Idioma:Inglês
Publicado em: 2012
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC4097080/
https://ncbi.nlm.nih.gov/pubmed/23225386
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/mus.23529
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